Alabama Autism & Asperger Info & Support Network

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Alabama Autism & Asperger support free videos, info, live chat. Ask questions to B.C.B.A. Board Certified Behavior Analyst, Advocate. Free!

Medical News Feed

Experimental drugs rewire brain connections in autism

Researchers reveal a different role played by missing gene in autism and uncover potential new treatments to reverse its effect on neural communication.

The 10 best autism blogs

Autism affects everyone differently depending on its severity. We have found the best autism blogs that support individuals, families, and carers.

What is stimming?

Stimming is a common symptom of autism. Learn more about it here, including the different types of behavior that can occur, and what can be done to help.

Could multivitamin use in pregnancy protect children from autism?

A new study published in The BMJ suggests that children born to mothers who use multivitamins during pregnancy may be at lower risk of autism.

How does oxytocin control the brain's social reward circuit?

New research sheds light on the mechanisms behind the brain's social reward circuitry. Results point to oxytocin as the "gatekeeper" to prosocial behavior.

Autism Speaks News Feed

Tune in: Research and health-related webcasts of interest to the autism community

A regularly updated listing of meetings, webchats, webinars and podcasts of interest to the autism community

Learn more in our regularly updated listing of presentations on new research and autism healthcare - including archived podcasts and videos of past webinars

November 06, 2017

Advances in autism research and healthcare

Webinars sponsored by the Autism Speaks Autism Treatment Network & the Autism Intervention Research Network on Physical Health

Advances in Autism Research & Care (AARC) is a free, monthly webinar series sponsored by the Autism Intervention Research Network on Physical Health (AIR-P) and the Autism Speaks Autism Treatment Network (ATN). Webinar topics alternate between research reports by ATN/AIR-P investigators and trending topics in autism healthcare. Though aimed primarily at educating healthcare providers, the webinars are open to the public. We extend a special welcome to members of the autism community.

Upcoming AARC webinars include: "Peer relationships in school: Student characteristics and response to interventions," on Tuesday, Nov 21, at 2 pm EST, led by renowned autism researcher and educator Connie Kasari. Dr. Kasari is an Autism Speaks-funded researcher and the heads the federally funded Autism Intervention Research Network on Behavioral Health, at the University of California, Los Angeles. REGISTER HERE.

Watch archived recordings of past ATN/AIR-P webinars here. Email Megan Eaves for more information about this webinar series.

Dec. 9: Learn how one postmortem brain donation led to many discoveries about autism

Neuroscientist Cyndi Schumann will lead a free online Autism BrainNet webinar describing how a single postmortem brain donation helped produce multiple scientific discoveries about autism, on Dec. 7 at 1 pm Eastern (noon Central, 11 Mountain, 10 am Pacific). Autism Speaks and the Simons Foundation for Autism Research created Autism BrainNet in 2013, as a safe repository of donated postmortem brain tissue for autism research. Register for the free webinar here. Individuals and families can learn more about becoming future donors at TakesBrains.org.

... Archived webcasts ...

* * *

Oct 24 meeting of the Interagency Autism Coordinating Committee (IACC)

The federal Interagency Autism Coordinating Committee (IACC) will hold its next quarterly meeting on Oct 24, from 9 to 5 Eastern, at the National Institutes of Health in Bethesda, Maryland, and via live webcast. The full-day meeting is open to the public and includes a public comment period. The IACC is charged with overseeing and coordinating autism-related research and services across federal agencies and departments within the National Institutes of Health. Autism Speaks encourages members of the autism community to participate in the meeting and make their views known.

Register to attend here.

Find the meeting agenda here.

View the archived webcast here.

****

Thanks to those who joined the July 18 "Autism and Health" Facebook LIVE chat with Autism Speaks Chief Science Officer Thomas Frazier. If you missed it, here's the archived webcast:

 

 

 


On June 2nd, Autism Speaks Chief Science Officer Thomas Frazier answered questions about autism research during a Facebook LIVE Chat with the Autism Speaks community. View the archived webcast below.

 

 

***

Learn how research on epigenetically regulated genes provides insights into autism’s gene/environment interactions. View the archived webinar here.

* * * 

On March 13, Mark Zylka, of the University of North Carolina Neuroscience Center, described his research using genetic analysis to gain insights into environmental risk factors for autism, with a panel discussion and comment period led by Valerie Hu, of George Washington University, with time allotted for audience questions. It was moderated by Autism Speaks Interim Chief Science Officer Mathew Pletcher and Autism Science Foundation Chief Science Officer Alycia Halladay, as part of an ongoing webinar series supported by the Escher Fund for Autism, Autism Speaks and the Autism Science Foundation. 

View the archived webinar below.

 

 

 

 

* * *

On Feb. 22nd, Donna Murray, Autism Speaks vice president for clinical programs and head of our Autism Treatment Network, hosted a Facebook Live chat, answering questions related to "Improving healthcare for people on the autism spectrum." You can view the archived webchat below or by clickinghere. Check out the comment section for related resources and links.

 

 

* * * 

On Jan. 25, Autism Speaks VP for Genomic Discovery Mat Pletcher hosted a Facebook Live chat about the Autism Speaks research program. View the archived chat - including an extended question and answer session below.

* * * 

 

The potential role of epigenetics in sex differences in autism

Presented on Nov. 15, 2016, by neuroscientist Tracy Bale, of the Perelman School of Medicine at the University of Pennsylvania, with an introduction by neurodevelopmental neuroscientist Donna Werling, of the University of California-San Francisco. Watch the archived webcast hereThis webinar is part of the Environmental Epigenetics of Autism Webinar Series co-organized by Autism Science Foundation, Autism Speaks and the Escher Family Fund for Autism.

 

 

 

Listen to the archived podcast here

Autism BrainNet is dedicated to advancing the highest quality research on autism through the generous post-mortem donation of brain tissue from families affected by the disorder. To learn more about the program – including information about registering your family – click here.

 

World’s largest autism genome databank adds more than 2,000 sequences

The Autism Speaks MSSNG program marks another milestone toward its goal of 10,000 fully sequenced human genomes for autism research

The Autism Speaks MSSNG program marks another milestone toward its goal of 10,000 fully sequenced human genomes for autism research

October 20, 2017

Today, the Autism Speaks MSSNG team announced the upload of an additional 2,030 fully sequenced genomes to the project’s cloud-based databank – making it the world’s largest whole genome resource for autism research, with more than 7,000 genomes from individuals affected by autism and their family members.

“To provide guidance on personalized care to people with autism, it’s important to fully understand what genetic form of autism each person has,” says MSSNG research director Stephen Scherer. “To accomplish this, we need to perform whole genome sequencing on a large and diverse group of participants and provide this information to the research community in an accessible form.” Dr. Scherer also directs The Centre for Applied Genomics at The Hospital for Sick Children (SickKids), in Toronto.

MSSNG team member Susan Walker, also of The Centre for Applied Genomics, made the announcement as part of her presentation on the Autism Speaks MSSNG program, at the annual meeting of the American Society for Human Genetics, in Orlando, Florida. She also described how the team is adding to the behavioral and medical information associated with each privacy-protected genome. These additional measures include developmental milestones, social abilities, language, sleep issues and anxiety, to name just a few.

MSSNG’s mission is to advance the development of personalized treatments and supports for people with autism based on deeper understanding of the gene variations that influence the condition’s symptoms and associated medical conditions.

Autism Speaks makes MSSNG resources freely available to qualified researchers worldwide, together with a powerful tool kit of online analytic tools. It is also developing a lay-friendly community web portal where participating individuals and families can access meaningful information about their genomes, as well as connect with individuals and families with genetic similarities if they so desire.

“We are thrilled that more than 100 scientists around the world are already using MSSNG resources to identify new subtypes of autism and study their underlying genetics and biology,” says Autism Speaks Chief Science Officer Tom Frazier. “This is the crucial research we need to address the highly individual needs of each person on the autism spectrum.”

MSSNG is a collaboration between Autism Speaks, SickKids and Verily (formerly Google Life Sciences), which hosts the MSSNG database on its cloud platform.


Subscribe to Autism Speaks’ Science Digest to receive autism research news and expert advice posts delivered quarterly to your inbox. 

The results are in: Priorities in autism research

A report from the Chief Science Officer on the results of the 2017 Autism Speaks Science Planning Survey

A report from the Chief Science Officer on the results of the 2017 Autism Speaks Science Planning Survey

October 17, 2017

Today, I am happy to share the results of the Autism Speaks Science Planning Survey. Let me begin by extending tremendous thanks to the more than 6,000 people who completed the survey – including nearly 500 individuals on the autism spectrum, more than 4,000 of their family members and more than 1,700 researchers, clinicians and educators.

Your input provides integral guidance for our next three-year strategic plan for science, which we look forward to announcing later this year.

So what did we learn from our broad and diverse community? We saw strong support across the range of basic and applied autism research. Overall, we saw particularly strong support for research aimed at health and well-being, autism’s associated physical and mental health conditions, the transition into adulthood and life-span issues. This included the development of new behavioral therapies and social supports, as well as new medical treatments and improved screening and earlier diagnosis of both autism and its many associated health conditions.

Most importantly, perhaps, we are encouraged to see the strong alignment between the community’s input and the pillars of Autism Speaks mission “to enhance lives today and accelerate a spectrum of solutions for tomorrow” – with an emphasis on being a catalyst for research breakthroughs.

Already, your input is guiding the formation of our strategic planning for the next three years, and it will continue to do so in the weeks ahead as we finalize the plan and share it with you.

For those of you who would like to delve further into the survey findings, we’ve posted a question-by-question summary of the responses here.

With thanks and best wishes,

Autism Speaks Chief Science Officer Thomas Frazier

Autism researchers Coyle, Lord and State win international honors

Autism Speaks congratulates Joe Coyle, Cathy Lord and Matt State on receiving the National Academy of Medicine’s Sarnat International Prize in Mental Health

Autism Speaks congratulates Joe Coyle, Cathy Lord and Matt State on receiving the National Academy of Medicine’s Sarnat International Prize in Mental Health

October 15, 2017

Autism Speaks is pleased to see three leaders in autism research honored with the National Academy of Medicine’s 2017 Rhoda and Bernard Sarnat International Prize in Mental Health.

Child psychologist Joseph Coyle, of Harvard Medical School, is being honored for his revolutionary work integrating neuroscience and clinical psychiatry, which shifted psychiatry’s emphasis toward brain research. Child psychologist Catherine Lord and geneticist Matthew State are being honored as a team, for designing gold-standard diagnostic methods for autism (Dr. Lord) and using these tools to advance the study of autism genetics and genomics (Dr. State).

Drs. Coyle and Lord are members of the Autism Speaks Medical and Science Advisory Committee. Dr. State’s research has made fruitful use of Autism Speaks’ longstanding autism genome-sequencing programs, which are now part of MSSNG (pronounced “missing”) the world’s largest whole genome databank for autism research.

Read more about their award-winning research and National Academy of Medicine honors here.

 

 

Thank you for taking the 2017 Autism Speaks Science Planning Survey

We appreciate your input as Autism Speaks develops its next three-year strategic plan for science; we'll be sharing the results in the coming weeks

We want your input as Autism Speaks develops its next three-year strategic plan for science; we'll be sharing the results in the coming weeks

October 02, 2017

The Autism Speaks Science Planning Survey is now closed. Thank you for your input, which we'll be sharing in our science news column in the coming weeks. 

We want your input as Autism Speaks develops its next, three-year strategic plan for science.

The link below will take you to a brief survey soliciting your thoughts on the kinds of research you want us to emphasize – as well as any areas you think we should avoid. Your guidance is essential as we reassess how we meet the evolving needs of the autism community as well as build on recent advances in autism research.

We want to include input from all our stakeholders – individuals on the spectrum, families, researchers, clinicians and other autism advocates. We look forward to sharing the survey results – as well as our new strategic plan for science – in the months ahead.

 

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What is Autism?

About Autism: What is autism? Autism Spectrum Disorders (ASDs) are a group of neurologically-based developmental disabilities. Scientists do not know exactly what causes the problem. ASDs can impact a person's functioning across a wide range, from very mild to severe. Individuals with ASD are not different in appearance, but they may communicate, interact, behave and learn in ways that are different from typical peers.

Is Autism a common disorder?

Recent statistics from the U.S. Centers for Disease Control and Prevention (CDC) suggest that 1 in 68 people in the United States could be diagnosed with ASD. That means 24,000 children in Illinois have an ASD.

Autism Spectrum Disorders (ASDs) include:

*Autistic Disorder
*Asperger's Disorder
*Rett's Disorder
*Childhood Disintegrative Disorder
*Pervasive Developmental Disorder

What are some of the signs of ASDs?

People with ASDs may have problems with social, emotional, and communication skills. They might repeat certain behaviors and might not want change in their daily activities. Many people with ASDs also have different ways of learning, paying attention, or reacting to things. ASDs begin during early childhood and last throughout a person's life.

A child or an adult with ASD might:

Not play "pretend games" (like feeding a doll)
Not look at objects when another person points at them
Have trouble relating to others or not have an interest in other people at all
Avoid eye contact and want to be alone
Have trouble understanding other people's feelings or talking about their own feelings
Prefer not to be held or cuddled or may cuddle only when they want to
Appear to be unaware when other people talk to them but respond to other sounds
Be very interested in people, but not know how to talk, play or relate to them
Repeat or echo words or phrases said to them, or repeat words or phrases in place of normal language
Have trouble expressing their needs using typical word or motions
Repeat actions over and over again
Have trouble adapting when a routine changes
Have unusual reactions to the way things smell, taste, look, feel or sound
Lose skills they once had (for instance, stop saying words they were once using)

What Are the Earliest Most Reliable Signs of ASD?

Play Skills
At age... Did your child...
4-12 months Enjoy toys for their sensory value, mouthing, feeling, and hearing them
12+ months Use toys as they were intended feed dolls
16+ months Give objects identities other than intended (use blocks as cars or food)
30 + months Imaginative play make believe/role play

Social Interaction
At age... Did your child...
4 months Show interest in faces, smile back, initiate smiles
6 months Relate to parents with joy, smile often when playing
9 months Orient to name, play give-and-take
12 months Use gestures to get needs met, repeat actions, show objects
15 months Check parent's facial expression, draw attention to objects of interest, begin to show empathy
18 months Pretend play, attract parental attention by looks or gestures
24 months Enjoy playing next to children, offer toys
36 months Imagine self as a character, talk for objects, play show and tell, talk about feelings

Joint Attention
At age... Could your child...
2 months Exchange smiles
8 months Follow a caregiver with his eyes
9 months Follow a point
10 months Show objects
12 months Point to obtain an object
14 months Point to indicate to another an object of interest
14 months Look to others to gather social information

Investigate Further and Consider Autism if:
At age... Your child...
9 months Did not babble
12 months Did not point or gesture
16 months Did not use single words
24 months Did not use 2-word phrases
Any age Had a loss of language or social skills

What should you do if you think a child or an adult has an ASD?

If you or your doctor think there could be a problem, ask for a referral to see a developmental pediatrician or other specialist, and you can contact your local early intervention agency (for children under 3) or public school (for children 3 and older).

Right now, the main research-based treatment for ASDs is intensive structured teaching of skills, often called behavioral intervention.

It is very important to begin this intervention as early as possible in order to help your child reach his or her full potential.

Acting early can make a real difference!

 

ADAP

For the Alabama Disabilities ADVOCACY Program or ADAP click here These are the folks that will stand up for your rights and help you make sure your child is receiving an appropriate education if you feel like you are having a problem. I highly recomend them. It's a right not a favor!

DISCLAIMER
This site is in no way affiliated with the State of Alabama, Blount County Board of Education, Or any Governmental Entity. This site also has no affiliation with the Hayden School system. This site is independently owned and operated by Mike Tumlin. My mission is a simple one. Share & obtain, knowledge with everyone from all walks of life. The views and post shared on this site do not necessarrily reflect the view of myself or the members of this site.

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